10 Things to Know After Diagnosis of ME/CFS

Recently I received a comment from someone who has just been diagnosed with Chronic Fatigue Syndrome. They asked me “Is there anything that you would recommend for someone in the early stages of ME? Is there anything you wish you had known in the beginning that would have helped in the long run?” Thank you for your questions Venture Beneath The Skies. Here are my top 10 things to know in the early stages of ME/CFS:

  1. Give yourself time – ME/CFS takes time to heal. It does not just appear out of nowhere. Ill health has built up gradually over time due to poor diet, unresolved emotional traumas and many other lifestyle factors. It requires time to peel away the layers of the past that brought you to this dis-ease and regain your health.
  2. Get support – it is a good idea to get some support from your family who can care for you while you are ill and give you emotional and financial support. You may have to move back home to live with your parents. You could apply for disability living allowance.
  3. Don’t rely on doctors – doctors do not understand the holistic nature of ME/CFS which is an illness of body/mind/emotions/soul. They will give you drugs which will suppress the symptoms but will not treat the root cause of the illness. You need to spend time doing the inner healing work.
  4. Visit a nutritionist – there are often gut problems such as Candida overgrowth in ME/CFS which can cause the brain fog. Nutritionists can do food intolerance tests and will give you a diet plan to support your health as well as a supplement plan to get rid of the infection.
  5. Glandular fever – most ME/CFS begins by catching glandular fever/Epstein-Barr/mononucleosis virus. It is likely that your immune system was already weak due to stress and unresolved past emotional traumas, then you caught the virus and your body is finding it hard to fight it off. This is often the cause of the fatigue. You can look to an immune-boosting diet or supplements such as grape seed extract to remove the virus.
  6. Triggers – it is important to find out what your stress triggers are and avoid them as much as possible. It may be loud noise, light, travel, conflict, gluten etc. Take good care of yourself and create a peaceful environment in which to heal yourself.
  7. ME/CFS is curable! – don’t believe any person or website who tells you otherwise. I have recovered and I know many other people who have and are living normal lives. Your life will be completely different to the life you had before you got ill. Health will be your number 1 priority, you will stick to boundaries, respect yourself, speak up for yourself and live a life following your passions.
  8. Take control of your health – spend time reading about healing methods that you are drawn to and try them out. You have the power to heal yourself.
  9. Reconnect with nature – when I was first ill I used to sit in the conservatory and watch the birds in the garden. It was so relaxing and helped me to connect to the present moment. If you can get outside in the garden and enjoy the beauty of nature. It has many health benefits such as reducing stress and will uplift your mood. Bare foot grounding is amazing for healing the body.
  10. Be kind to yourself – healing take time so don’t beat yourself up for being ill. Thank yourself for the gradual progress you are making. Take good care of yourself and get lots of rest.

I hope these tips have helped you as you begin your journey back to health! Best wishes for your recovery!

4 thoughts on “10 Things to Know After Diagnosis of ME/CFS

  1. I love your points. Each person has to walk their own path to acceptance of the illness, limitations etc. and when they do that, the empowerment will begin! PS I’m nature, nature, nature all the way!

  2. Fantastic advice!

    I have also recovered from an “incurable disease” with diet and supplements. Detox methods. Don’t let any doctor tell you that it’s incurable and you have to live with it!!! They not say that because drugs don’t cure because they don’t get to the underlying cause. Wholistic healing does! I’m living proof and so are many others! Peace and love xxx

    1. Thanks Sara! You are a living inspiration to others too! Get your story out there and give others hope! Yes it’s true that drugs just treat the symptoms and not the root causes. Holistic healing all the way! Love and light, Kate xxx

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