Category Archives: ME/CFS

Therapies to Heal ME – Part 1

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Therapies to Heal ME – Part 1

After my diagnosis with Chronic Fatigue Syndrome I was determined to cure my ME, despite the NHS saying that it is an incurable, lifelong illness. I refused to accept that I had to suffer for the rest of my life.

So I set about researching on the internet for therapies that may help. I tried out so many therapies over the 3 years of being housebound with ME. Some would give temporary relief to my symptoms, while others allowed me to make huge shifts in my health that have had a lasting effect on my life. I have learnt something from every therapy that has added value to my life.

It was when I visited the nutritionist and started gradually changing my diet to include more fruits, vegetables and whole grains that I experienced noticeable increases in my energy levels and a reduction in my brain fog, dizziness and weakness.

Here is a list of the all therapies to heal ME that I tried out between December 2009 to December 2010 in an effort to cure my illness, including dates, and my experiences with them:

2009

December – Diagnosed with Chronic Fatigue Syndrome

  • Caveman Diet – recommended  by my Dad who had a friend from work whose daughter had ME and was trying this diet. It consists of eating only meat and non-starchy vegetables. Unfortunately I had an intense detox reaction and was excreting a lot of dark, smelly material (toxins) and it was overwhelming for me. I became even more frail and started dreaming of bread, so I stopped the diet and started on a simple diet of steamed fish, veg and rice.

2010

February

  • Gupta Amygdala Retraining Programme – This involved watching DVDs for hours, which I found difficult because I had to concentrate for so long. There was a floor map to act out a sequence of movements and phrases whenever I had a negative thought. I had to say ‘Stop! Stop! Stop!’ and use hand gestures to break my negative thought. Once I had memorised the sequence I was supposed to do it around the house wherever I had a negative thought. I found it embarrassing doing it in front of my family. However after a few weeks I felt much more calm and happy and my mind was more relaxed.

March

  • Acupuncture – it involved lying on a table and having needles inserted into in specific points on the body which unblocks your meridian channels. I felt no pain, just a slight sensation as the needle went in. I remember on one occasion I experienced a feeling like an electric shock shooting through my foot as she unblocked a foot meridian! It gave me temporary relief from my symptoms, but the benefits quickly wore off. Fortunately she recommended that I visit a nutritionist she knew, as she could see I had severe digestive issues.
  • Bush Flower Remedies – the acupuncturist asked me to select 5 bush flower remedies that I was drawn to and made up a tincture for me to take. I used then on a daily basis but they did not have a very strong effect. Although, I do remember that in one therapy session I got very upset and she gave me a few drops of one bush flower remedy and within a minute I felt calm again.
  • Aromatherapy – I was drawn to aromatherapy and bought the excellent book Complete Illustrated Guide to Aromatherapy by Julia Lawless. I would often put a few drops of essentials oils in a vaporiser which would fill the house with a calming aroma that left me feeling very relaxed.
  • Feng Shui – I remember vividly the first day of Spring. The sun was filling the house with bright light and I was drawn to pick up a book on Feng Shui from the bookshelf which had been sitting there for years unread. I became very interested in Feng Shui and started applying it in the house. It was an interesting hobby that kept me busy. I learned that the flow of energy through your house affects your life. I moved the furniture and placed crystals around the house which vibrate at high energy levels and protect me from ElectroMagnetic Radiation (EMR).
  • Acupressure – after visiting the acupuncturist, I became interested in acupressure which does not require needles and can be practised by anyone. It involves using your fingers to putt pressure on sensitive points on the body which clears any blockages in the meridians. I ordered a book called Acupressure for Common Ailments and used the technique at home. It immediately relieves muscle tension and gives a feeling of peace and calm.

April

  • Clutter Clearing – I started spontaneously clearing out my clutter in the Spring. This process went on for about 6 months until I had got rid of most of my clutter in the house. Strangely good things started happening in my life. In August I read Karen Kingston’s ‘Clear Your Clutter with Feng Shui’ book which inspired me to let go of the last items of clutter which I had an emotional attachment to. It helped me to deal with stuck emotions from the past and release them. I cleared out most of my wardrobe because the clothes reminded me of being at university and working at Premier Foods where I got ill. I moved on from the past and new things came into my life.
  • Crystal Healing – I become interested in crystals and usingP1000373 their different properties to heal emotional issues. My favourite crystals were amethyst for protection from negative energies, rose quartz for acceptance of others and healing the heart and citrine for positivity and abundance. I would also cleanse my chakras by laying down and placing 7 tumblestones of different colours over each chakra for 10 minutes or so to rebalance my body.

May

  • The Chrysalis Effect Supported Recovery Programme – The Chrysalis Effect was the most helpful programme I have done. Once a fortnight I was emailed exercises to do such as a questioning my beliefs, values and lifestyle. I had many realisations and made lots of changes which improved my life. The staff provide great support via email as they have experienced and recovered from ME themselves.
  • Holosync – I discovered Holosync Audio meditation in the Chrysalis Effect Programme. This is another one of the best things I have ever done. Whilst resting for an hour everyday laying on my bed, I allowed my body to get into the healing state and quietened my over-active mind. I became a more peaceful, calm and happy person. My stress tolerance improved.
  • Reduce ElectroMagnetic Radiation (EMR) – I turned my bedroom into a tranquil paradise and removed most of my electrical appliances such as my TV and computer to reduce nasty EMFs that affect my sleep.
  • Dowsing for Earth Lines – I learned about P1030154rdowsing and dowsed the house for harmful earth (ley) lines using coat hangers bent into L-shaped rods. I discovered I was sleeping with a ley line going right through my body and two diagonally crossing over my ankles – which would explain my constantly cold feet! These harmful earth energies disrupt the nervous system and weaken your immune system. The body is unable to heal while you sleep as it is constantly fighting to keep your body in balance from the disruptive Geopathic stress. So I moved my bed and began sleeping better immediately. Later on I discovered that copper pipes deflect the earth lines so I placed them in strategic positions around the house and everyone in the house began sleeping better!

June

  • Hair Analysis for Food Intolerances – I sent off a sample of my hair for analysis of food intolerance by a laboratory. The results came back and were very interesting but did not seem to correlate with what the nutritionist later detected.
  • Colonic Irrigation via Colease Herbs – I can’t remember the outcome of the Colease herbs but know it didn’t cure my chronic constipation.

July

  • Nutritionist, Supplements & diet change – I went to see a Nutritionist, at the recommendation of my Acupuncturist. This was the best thing I ever did for my ME recovery. She used a Vegatest machine to detect that I had Candida, Glandular Fever and  CytoMegalo Virus. She gave me a course of natural supplements to kill off the infections. Also I was deficient in Vitamin C, iron and Omega-6-fatty acids and she gave me vitamins to take. After taking these supplements for a few weeks I began to see vast improvements in my health. I could concentrate for longer, my mind was clearer; I could do more physical activities around the house such as cooking and washing my hair.  All this time it had been viruses and a fungal infection giving me all my symptoms. She also discovered that I was intolerant to cow’s milk, Yeast, Sugar, and Beef. So I immediately cut all these foods out of my diet. I had to check the ingredients labels of all the food I ate.  I felt much better after doing this, especially after cutting out sugar. I began eating healthier, experimenting with cooking new foods.
  • Fluconazole – the nutritionist advised my to visit my doctor when she detected that I had a yeast infection. He prescribed me fluconazole for my thrush.
  • Anti-Candida Diet – I felt weak and shaky the morning after cutting out sugar from my diet. This is the body’s normal response of withdrawal symptoms to suddenly stopping taking a drug. I replaced the processed white sugar with fruit.

August

  • NHS Pacing Programme – I went once but did not like it as they were very patronising and only talked about the managing the symptoms and not things that might help cure them. They made us sit on hard, uncomfortable chairs which for people with ME who have aching bodies is not very comfortable.

September

  • Space Clearing – I bought a sage smudge stick online as well as a shell and feather to represent to 4 elements of earth, fire, water and air. I lit the sage and wafted the fumes around every room in the house using the feather and catching the ashes in the shell. This cleansed the house of any stagnant, negative energies. Afterwards the energy in the house felt lighter, fresher and happier and the air looked visibly sparkly. I carry out a space clearing ceremony once a year to clear out and the negative imprints from arguments or negative entities.
  • Relaxation Music – as I was housebound I would spend most of the day sitting in the conservatory watching the nature outside and reading and spent the evenings listening to relaxation music from Global Journey where you can get 25 free downloads. This really helped to slow down my overactive nervous system and get me out of fight-or-flight mode and into the rest-and-digest parasympathetic nervous system. The gentle sounds, calmed and relaxed me and left me feeling so peaceful and content.

October

  • Positive Affirmations – I also read the most amazing book ‘You Can Heal Your Life’ by Louise L. Hay. She taught me how to change my negative thinking habits into positive ones and how positive thoughts attract positive experiences and it brought miraculous events into my life.

December

  • Gluten-free Diet – I bought the book Cooking Without Make Easy by Barbara Cousins and began cooking gluten-free food. I also used the Dove’s Farm recipe booklet that my Mum got at a gluten-free meet-up group. I started baking bread, cakes and biscuits as well as making oat flapjacks and trying out FreeFrom pasta and bread.
  • Counselling & Hypnotherapy – the nutritionist recommended that I go and see a counsellor she knew. It was helpful to talk about traumas that happened in the past and my current problems. She gave me some great advise such as encouraging me to join a ballroom dancing club to be around people again and to learn to drive to get more freedom and independence. She also advised that I leave my parents house and rent a room to get away from a controlling family member. She did guided visualisations to get me into a relaxed state and then put positive messages into my subconscious mind.

If you have ME/CFS, I hope that these therapy reviews give you some ideas of healing methods you can try out. Everybody is different and what works for one person may not work for someone else. Still in my opinion it is worth trying everything that you feel may help until you find the one that works for you.

Stay tuned for Part 2 of Therapies to Heal ME which includes the therapies that I tried from 2011 to 2012.

ME Question & Answer Session

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Hi everyone! Since the latest issue of WDDTY featuring my ME recovery story was released, I have had lots of messages from recently diagnosed ME sufferers saying thank you for sharing my story and it is has given them hope, which is wonderful! They have also been asking lots of questions about ME and health and I wanted to share the questions and answers on my blog as it may help other people with ME.

Q: How long did it take you to recover fully?

A: I had my health collapse in December 2008 then had the diagnosis of CFS in December 2009 after a year of tests. I visited the nutritionist in July 2010 and felt a lot better after a few weeks of changing my diet and taking the recommended supplements. I was fully well and able to go back to work in December 2011. So I would say it took me 3 years to recover fully.

Q: Can you suggest any supplements that might help?

A:  I would recommend Source of Life Liquid Gold mulitivitamin to give your body support as it is easy to absorb and gives you an instant energy boost!  Vitamin C is important for boosting a low immune system, which is common in CFS. I took Vitamin C on a daily basis during the worst of my illness. Also a probiotic to repopulate the good bacteria in your gut.

Q: Do you believe candida was central causing to your CFS?

A:  I believe the main cause of my CFS was catching glandular fever at university and it weakened my immune system. I then took the anti-biotic tetracycline for my acne and it wiped out my good bacteria which allowed the candida to proliferate. As soon as the nutritionist detected that I had candida on the bio-resonance machine I cut out processed sugar and minimised sweet fruit. I also took grapefruit extract that she recommended and cut out yeasty foods. The combination of these approaches wiped out the candida within several weeks.

Q: Do you eat fruit nowadays considering it can start to re-feed the candida?

A: Yes I regularly eat fruit since it is full of vitamins and nutrients and the candida has never returned. My immune system is strong now and I regularly take a probiotic to support my good bacteria so candida cannot thrive.

Q: Did you find veganism superior to low fat meat protein+veg diet (like a stone-age)?

A: I would not recommend a low fat diet as the body requires a certain level of fat to function well. If you want to lose weight I would recommend removing processed sugar from your diet as the body cannot use it as it is devoid of nutrients and so stores it. I have never been on a cave man diet, but I don’t eat a lot of grains as they are hard for the body to digest.  I eat a high protein vegan diet with foods such a quinoa, brown rice, peas, nuts, seeds and legumes. I don’t eat meat as I believe it is wrong to treat animals cruelly and murder them when we don’t need to eat meat.

Q: How do we know which diet is healthy and right?

A: There are so many diets out there. You have to listen to your body to learn what is right for you. If you have a bad reaction to a food or get IBS from taking supplements, it is your bodies way of telling you it doesn’t like it and to stop consuming it. Don’t listen to what other people tell you, just follow your intuition and do what is right for you. You can do muscle testing on foods to see if you get a strong or weak reaction to a particular food.

Thank you to everyone who took the time to send me a message. Best wishes to you on your ME recovery journey.

Why ME?

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WDDTY September CoverWhy ME

Read about how I used a healthy diet to recover from ME in the latest issue of What Doctors Don’t Tell You magazine which is out in the shops from today!

The article entitled ‘Why ME?’ describes the phases of diet I went through before reaching the cooked and raw vegan stage I am at today, having regained all of my energy. It is a huge change from being bed bound at the start of my severe ME and took 3 years of making positive health changes to recover fully. The article also features my 10 Steps for ME Recovery.

ME is a very real illness despite many doctors putting it down to being in the mind and prescribing anti-depressants. It is caused by the organs of the body not getting the energy they need to function properly from a poor diet devoid of nutrients. The mitochondria cells which produce the energy currency ATP need certain food components to function, and if they are malnourished, the organs such as the heart cannot sustain a fast heart-rate and blood pressure drops. This lead to collapses which I have experienced first-hand. If the brain does not get the energy it needs to function, it causes brain fog, poor concentration and dizziness which I have also experienced. As soon as you consume a diet of fresh fruits, vegetables and wholefoods, the cells are filled with the vitamins and nutrients they need to heal and return to full functioning.

I genuinely hope the article inspires someone with ME to look at altering their diet and see the positive changes in their health. They can read my story and know that the illness is curable and despite what we are told, full recovery is entirely possible.

I am training to become a nutritional therapist and plan to work one-on-one with people suffering from ME to teach them the tools to heal themselves.

My Transition from Junk Food to Healthy Food

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Here is my transition from junk food to healthy food:

Step 1: Junk Food

When I was a student at university living away from home and first became ill with ME/CFS I used to eat a diet of junk food such as:

  • Microwave ready meal lasagne.
  • Microwave ready meal salmon and broccoli in creamy sauce.
  • Microwave chips and fish fingers.
  • Pop tarts
  • Sugary Cereal
  • Pizza
  • Prawn mayonnaise sandwiches
  • Baked potato with tuna mayonnaise
  • Chocolate bars
  • Pasta in creamy sauce
  • Beef burgers

I now know that when you microwave meals it denatures the structure of the food so it is not the same food that went into the microwave!

Step 2: Gluten-Free

After visiting a Naturopathic Nutritionist who used a bio-resonance machine to detect my wheat and sugar intolerances, I altered my diet and cooked things such as:

  • Trout with wild rice, steamed broccoli and carrots.
  • Sea bass with gluten-free pasta and steamed vegetables in a creamy sauce.
  • Sausages, wild rice and steamed vegetables.
  • Gluten-free pasta in tomato sauce.
  • Steamed egg ramekin.
  • Gluten-free sandwiches
  • Rice pudding
  • Oat porridge with blueberries
  • Spaghetti Bolognese with gluten-free pasta
  • Oat flapjacks
  • Gluten-free pasta bake
  • Fish pie
  • Homemade pork burgers
  • Lamb shanks

Step 3: Reduce Processed Food

However my body become intolerant to the gluten-free pasta made from maize which I was consuming at least once a day. I developed IBS with stomach cramps, diarrhoea and even vomited once. So I had to change my diet again and ate things like:

  • Tofu with rice noodles
  • Carrot & Coriander Soup
  • Spanish Sausage & Bean soup
  • Tomato soup
  • Cheese & tomato sandwiches
  • Liver and bacon with potatoes
  • Baked potato with tuna mayonnaise
  • Pork balls with stir-fried vegetables
  • Chicken Gohan curry
  • Chicken kebabs in peanut satay.
  • Homemade chips
  • Chicken drumsticks & wings

Step 4: Vegetarian

I became interested in Detoxing the Pineal Gland and read a book where the author explains that tap water contains toxin fluorine and chlorine and fish contains toxic mercury. He also explained that meat has a very heavy vibration of death, fear, pain and suffering. I did not want to put that energy into my body as I wanted to raise my vibration. Also I had a emotive dream about a chicken in packaging that was half cooked and half still alive looking up at me with innocent eyes. I couldn’t bear to eat chicken after that and decided to become vegetarian so as not to support animal cruelty. The meals I ate included:

  • Baked butternut squash with thyme, walnuts and feta
  • Spanish omelettes
  • Baked potato with cheese
  • Potato salad
  • Greek salad
  • Hummus on gluten-free toast
  • Gluten-free pizza
  • Ratatouille

Step 5: Raw Vegan

Then I met my health-conscious ex boyfriend who had cancer and became raw vegan like him to get the benefits of detoxing my body, more energy and clear skin. I ate things such as:

  • Kale Salad with Sprouted Seeds
  • Smoothies
  • Juices
  • Raw chocolate
  • Chocolate & almond milk smoothie
  • Veggie nut mix in lettuce boats with hummus
  • Nori Rolls
  • Guacamole on corn cakes
  • Hummus and sprouted sunflower seed on rice cakes.
  • Raw carrot cake
  • Kale chips

Step 6: Mixture of Cooked & Raw Vegan

I found it very difficult to get enough calories on that diet and although my skin was clear, I felt hungry and weak. So I am now a mixture of cooked and raw vegan and seem to have a lot of energy. My favourite meals at the moment are:

Featured in the September 2014 issue of WDDTY magazine in the article ‘Why ME?’ about my recovery from ME/CFS using diet.

10 Steps to Recovery from ME/CFS

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10 Steps to Recovery from ME/CFS

50156822 - young woman opening curtains in a bedroom

Here is a list of steps I have created in a moment of inspiration that you can follow when working towards your recovery from an illness. I followed these steps when recovering from my ME/CFS. My 10 steps to recovery from ME/CFS:

  1. Accept – stop and accept where you are. You may have to leave your job and be cared for by family. Accept and make peace with your current limitations.
  2. Look externally – get help and support from the outside world. See a doctor or a therapist.
  3. Healthy diet – visit a nutritionist and take supplements if necessary to ensure you are getting adequate nutrition to support your body during the illness. Alter your diet to include more fruit and vegetables.
  4. Look within – look inside of yourself to find out why you are ill and what lesson it has to teach you. Spend quite time alone meditating to connect with yourself.
  5. Look to the past – what traumas happened in the past that perhaps you have not dealt with? What behaviour patterns did you learn from your parents that perhaps are not serving you well in your life?
  6. Grieve – spend time grieving the past, then release it and let go. The past is over and you are free now.
  7. Get back into society – get out and meet people again. Do some volunteering. And if you are ready, look for a job.
  8. New behaviours – practice new behaviours to replace the old ones that may have made you ill. Think positively to attract good circumstances and people into your life. Practice being grateful for what you have. Think of 3 things to be grateful for every night before you go to bed. It can be as simple as ‘I am grateful to have a comfortable bed to sleep on.’ or ‘I am grateful for the caring and supportive friends and family that I have.’
  9. Look to the future – where do you want to be in 10 years time? Set goals for yourself. What would you really love to do with your life? Find your passion and take small action steps towards making it a reality. Create a vision board.
  10. Keep learning – the journey to great health is an ongoing one. Read about health and keep making small changes in your life such as starting to do 15 minutes exercise everyday even if it is just going on a short walk.

I wish you the best in your journey to recovery!

 

Featured in the September 2014 issue of WDDTY magazine in the article ‘Why ME?’ about my recovery from ME/CFS using diet.

Copyright: lzflzf / 123RF Stock Photo

My Story: How I Became Ill With ME/Chronic Fatigue Syndrome

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Recently I’ve been studying Infectious Diseases for my Nutrition course exam. Reading about viruses and bacteria, I had a revelation about what caused my ME.

Basically I caught Glandular Fever/Epstein Barr virus at university, also known as the kissing virus. Virus inject their DNA into your cells which replicate their DNA for them and create more viruses! Eventually the viruses burst the cell and are released. They go undetected by your immune system and they hide in your cells and alter your genes for immune defence.

So this caused me to feel fatigued, dizzy, weak, with brain fog, difficulty concentrating.

Also I had a typical student diet consisting of chocolate, crisps, microwave ready meals, pasta and alcohol. So my diet was atrocious! I was malnourished and the high sugar diet gave me spots.

I went to the doctor and told him my symptoms. He gave me tetracycline antibiotics to take for the acne and told me to keep a food diary for a few months and then get back to him. I felt really alone and unsupported and didn’t know what was happening to me.

Back then I had very low self-esteem and pushed myself to please others, doing what was expected of me without questioning what I wanted to do. So I carried on working hard studying for my chemistry degree and working full-time on my industrial placement year at the same time, even though I could barely concentrate. I started collapsing suddenly as I was so weak.

Anyway the antibiotics took their effect and killed off the bad infection. However they also wiped out my good bacteria so the opportunistic yeast fungus that lives in everyone’s gut called Candida Albicans overran my gut. They have hyphae projections that plant like roots in the gut wall and cause little holes to form that allow food particles to leak through the gut into the bloodstream causing leaky gut syndrome.

Eventually I became so ill in December 2008 that I was unable to function in society so my parents brought me back home and my Mum had to care for me for 6 months as I was too weak to stand up and walk to the kitchen to get a drink or make food. I was confined to either my bed or sitting on the sofa in front of the TV.

After a year of diagnostic tests from the doctors, they all came back negative and a neurologist in London diagnosed me with Chronic Fatigue Syndrome (a syndrome is a group of symptoms) in December 2009. The only treatment they could offer me was antidepressants and that said it would take time to improve.

At this point I took charge of my own health, and with the little energy I did have I began researching on ME I signed up to an ME monthly newsletter and in one issue it mentioned that acupuncture can help. So my Mum booked an appointment for me to see a local acupuncturist.

Although the acupuncture only provided temporary relief, and not helpful in the long time, she detected that I had severe digestive issues and recommended that I go and see a Nutritionist.

This was the key to my recovery as she used a bio-resonance machine to detect that my body was overrun with multiple viruses, Candida and I can several food intolerances including wheat, yeast, sugar and beef. I immediately cut out the offending foods and wondered what on Earth I could eat as everything seemed to have sugar and wheat in it.

I remember when I cut out processed sugar I had the shakes for a day like I was coming off a drug. I ate fruit as a replacement.

This is when my passion for cooking began as I began experimenting with wheat-free alternatives and baking my own bread with gluten-free flour.

After about 6 weeks of changing my diet and taking supplements including Oregano to kill the Candida and natural antiviral herb supplements, I returned to see the Nutritionist and she noted a marked improvement in my health. I felt better and had so much more energy. The brain fog had cleared.

Thank you for taking the time to read my story. I believe it is my life purpose to share it and to spend the rest of my life helping other people with their health, using the knowledge I have learned on my own health journey. I feel blessed to have had this first hand experience of illness so I can really relate to my future clients and help them on a deeper level.